Cancer Registry: Information As A Tool For Disease Control In Colombia

Lizbeth ACUÑA, Cuenta de Alto Costo, Colombia
SANCHEZ P. Department of Epidemiology, High Cost Account, Bogotá, Colombia , SOLER L. Department of Epidemiology, High Cost Account, Bogotá, Colombia , ALVIS L. Department of Epidemiology, High Cost Account, Bogotá, Colombia

1 Department of Epidemiology, High Cost Account, Bogotá, Colombia


Objective: According to the national regulatory framework it was defined a registry of information that would meet the cancer situation from the needs of the health care system, the clinical interests and the decision makers.

Methods: A comprehensive literature review was performed to obtain documents to identify the relevant variables to determine monitoring indicators used  by insurers and providers in the attention of patients with cancer. Variables were selected and defined by an agreement with clinical experts, thematic and methodological experts which were evaluated by the Ministry of Health in order to review and approve the structure to gather the information.

Results: a structure of 148 variables contained in a resolution (law) that requires all entities with populations under their charge to report annually to the High Cost Account all the patients with a diagnosis of cancer, clinical and demographic characteristics and the process of care, among others. In 2015 a total of 166,224 records for 165,125 patients living with a diagnosis of cancer were reported. Different indicators compared with some estimations for the country that allowed to identify existing gaps.

Conclusion: the implementation of a mandatory information registry as a public policy, can get real information for data analysis on the situation of the disease, standardized reporting methodology and encouraging the culture of information registration not only for quality analysis but to obtain indicators for decision making.