Initiative for semi-automated population based cancer registry in Iran

Kazem ZENDEHDEL, Tehran University of Medical Sciences, Iran
NAHVIJOU A. 1 , TAHERI A. 3 , JAFARPOUR M. 2 , GOLMAHI M. 1 , BITARAF E. 2

1 1. Cancer Research Center, Cancer Institute of Iran, Tehran University of Medical Sciences, Tehran, Iran
2 2. Office of Statistics and Information Technology, Ministry of Health and Medical Education, Tehran, I.R of Iran
3 3. Faculty of Management, Iran University of Medical Sciences, Tehran, I.R of Iran
4 5. Digestive Disease Research Institute, Tehran University of Medical Sciences, Tehran, Iran

Cancer registries are essential elements for cancer control programs. Iranian government launched a nationwide cancer registry program since 2002. However, the program could not reach the reasonable level of completeness and validity. Only Golestan province succeeded to run a high quality registry program and publish the results in the IARC monograph “Cancer in Five Continents, Volume 10, 2013”. We initiated 10 regional cancer registries in different part of the country. A memorandum of agreement has been signed with the International Agency for Research on Cancer (IARC) to provide technical support the new registries.
We established a registry office in each province and provided essential infrastructure to run cancer registry activities in the region. The hospital information system and laboratory information system was improved to submit electronic reports to the registry offices. Cancer registries will use Iranian Integrated Care Electronic Health Record (locally called SEPAS), a national system designed for creation and integration of health data regarding each Iranian citizen to obtain the reports of cancer patients from laboratories and hospitals. We translated CanReg5 software and added Farsi calendar to the program to use it in the cancer registries in Iran. The national center for cancer registry is located in the cancer institute of Iran and provides technical support, training, and consultation to the regional registries. With capacity building and providing proper training to the registry managers and staff of the regional centers, and performing regular monitoring and updates will lead to high quality registry programs in Iran. These semi-automated registries will cover about 40% of the Iranian population. Such data would be sufficient to estimate incidence and mortality rates of cancers for the entire Iran and use it for cancer control planning. We will report the details about the framework and progress of the program in the conference.